Official establishment of the organization with our first volunteer board.
About NF Aware Nigeria
We are a dedicated collective of medical professionals,
advocates, and families united by a single mission: to redefine the
landscape of Neurofibromatosis care in Nigeria through empathy,
education, and excellence.
Our Journey
NF Aware Nigeria began as a small support group in Lagos and has grown
into a nationwide movement. Our story is one of persistence against
stigma and a relentless pursuit of medical equity for all Nigerians
affected by NF.
Expanded to five major cities, reaching over 1,000 families.
Collaborating with leading hospitals for specialized NF clinics.
A nationwide portal for telemedicine and resource sharing.
Our Purpose
Mission
To raise awareness, advance research, and provide support for everyone living with Neurofibromatosis in Nigeria, creating an inclusive, stigma-free society rooted in respect and love.
Vision
To become a globally recognised advocacy platform using storytelling and creative media to advance medical research, drive funding, and ensure early diagnosis and full destigmatization.
Our Purpose
Our strategic approach focuses on three core pillars that drive sustainable change.
Advocacy & Storytelling
Our strategic approach focuses on three core pillars that drive sustainable change.
Education & Research
Providing up-to-date medical info and
supporting local research initiatives for better
care.
Community & Support
Creating safe spaces for connection, shared
experiences, and emotional resilience.
Our Purpose
Betini Udo
Communications Lead
Gabriel Obi
Assistant Communications Lead
Betini Udo
Communications Lead
Betini Udo
Communications Lead
Betini Udo
Communications Lead
Betini Udo
Communications Lead